Sienna, nicknamed Sinny, was born in Texas
weighing only 1 lb, 7.3 oz. She is one of the less than 200 known Primordial Dwarfs in the world. She's even more rare because she's a twin.
A Primordial Dwarf with a twin is practically unheard of--ever!
At 13 years old, she weighs 38 lbs.
She also has another rare condition, called Dandy Walker.
Doctors originally deducted that she would be a vegetable
and would not have a normal life. She is living proof,
that all things are possible with God!
Also, look for the Sinny-Size Series of children's books based
on Sienna's adventures. They take you through colorful adventures where Sienna discovers the great things that come from being different. Click here to order at a great price!
Sienna's Family
Sienna lives in Texas with her dad, mom, twin sister
Sierra and 17-year-old brother.
weighing only 1 lb, 7.3 oz. She is one of the less than 200 known Primordial Dwarfs in the world. She's even more rare because she's a twin.
A Primordial Dwarf with a twin is practically unheard of--ever!
At 13 years old, she weighs 38 lbs.
She also has another rare condition, called Dandy Walker.
Doctors originally deducted that she would be a vegetable
and would not have a normal life. She is living proof,
that all things are possible with God!
Also, look for the Sinny-Size Series of children's books based
on Sienna's adventures. They take you through colorful adventures where Sienna discovers the great things that come from being different. Click here to order at a great price!
Sienna's Family
Sienna lives in Texas with her dad, mom, twin sister
Sierra and 17-year-old brother.
What makes Primordial Dwarfism different?
Primordial Dwarfism is a category of Dwarfism with different subtypes. Most PDs are extremely short at birth. Unlike other forms of Dwarfism, Primordial Dwarfs are proportional, but much, much smaller. Sort of like "Honey I Shrunk the Kids."
Research suggests that Primordial Dwarfism has been around for many centuries, however, very few specifics are known about it.
So far, these subtypes have been identified:
(Doctors have concluded thus far that Sienna most likely has a new subtype.)
- Majewski osteodysplastic primordial dwarfism (MOPD) type I
- Majewski osteodysplastic primordial dwarfism (MOPD) type II
- Majewski osteodysplastic primordial dwarfism (MOPD) type III
- Seckel Syndrome
- Russell-Silver Syndrome
- Meyer-Gorlin Syndrome
To learn more about Primordial Dwarfism you can visit:
